For those of you that dont already know, Porter was evaluated and diagnosed with PDD-NOS (pervasive development disorder not otherwise specified) This is on the autism spectrum. They did say that he has alot of the qualifications for aspergers so to read up on that. Becasue of his delays he qualifies for free preschool through the school system. He has been going for a few weeks now and really seems to enjoy it! He goes tuesday and thursday from 9-12. If you want to know more about his delays you can read about it at this links:
Basically porter just has a really hard time with changes to his routine, new people or situations, large groups, and communicating. He is a smart kid and we enjoy him but sometimes wish that others could see the happy easy going kid he is at home while in his comfort zone. Somedays i get really frustrated with him and it makes me sad that he might never tell me he loves me. I also would love to gets hugs and kisses every night from him, but i am lucky to get a high five most nights!
disclaimer: the spellcheck on here is not working today, so sorry!
7 comments:
Sis, I'm glad you posted that. I know how frustrating it is to have a child with an invisible disability. It's frustrating as a parent to not have people understand, and frustrating and saddening to want so much for your child and to see them struggle, not knowing if they ever will be "normal." I totally hear you on the wanting to hear "I love you" and get hugs and kisses. I know Porter loves you, (I'm sure you do too) and one day he will tell you how much you mean to him, even if it's in the afterlife. I'm so grateful for the knowledge that we will all be perfected in the next life, it gives me so much peace to know that no mater how far our kids go, or don't go, that one day they will have a perfect body and mind. And I'm sure then they will tell us how much they love us, and how grateful they are for working so hard to help them overcome their mortal challenges.
I love my little Porter, just the way he is, quirks and all. It just makes those rare hugs all the more special. :) You are an awesome mommy. Porter is blessed to have a mom who fights for him and protects him and will help him navigate through this crazy, scary world.
I have so much to say to you but to start I wish I could give you a giant hug. Porter is perfect. He is so lucky to have you as his parents. You stuck with it until you found someone that could help him. His new preschool is going to be so wonderful for him and I'm so thankful you found them and they are willing to let Porter come.
Hang in there. I know how hard it is to see your sweet boy struggling and not having any idea how to help him. Someday he is going to be an amazing man and father and its because of all you have done for him.
Take care and know I'm thinking of you!
I have so much to say to you but to start I wish I could give you a giant hug. Porter is perfect. He is so lucky to have you as his parents. You stuck with it until you found someone that could help him. His new preschool is going to be so wonderful for him and I'm so thankful you found them and they are willing to let Porter come.
Hang in there. I know how hard it is to see your sweet boy struggling and not having any idea how to help him. Someday he is going to be an amazing man and father and its because of all you have done for him.
Take care and know I'm thinking of you!
I can't wait to get acquainted with Porter now a year older than my memories of him. For me at this point, he is the grandchild I tend to think of when I imagine myself doing things with grandchildren--I'm sure that is because he was the only one big enough to do much with before so he is the only one I have a history of memories with. (That's excepting Katey's kids but we've had so little time to spend with them.) That is my greatest sorrow that you will probably be moving. I feel quite close to you with phone calls we share but it is so hard to have that real emotional closeness with children you rarely see. The videos, pictures, and things you share about Porter and Theo really help but it is still not the same as being there.
My friend RoseE has aspergers; she is linked to my blog. She's been one of my closest friends through college, and I adore her to death. When people say "autism" they tend to think of only the most extreme cases, but her whole family (through her Dad's side) has Ausperger's); she doesn't get emotional about things, but she tells me she loves me all the time.
Anyway, not trying to downplay Porter, or your trials, just trying to say that I think through your and Cory's loving guidance he'll grow up great.
On another note, Avram's brother loves purple still, and he's on a mission; he even had his mission bike painted purple. :)
Purple is the color of kings! I'm glad Porter has a mom who sees the greatness in a three-year-old with his own style. Purple just seem natural here, where bright, gaudy colors are the rule.
Camilla,
You are the best person to have a son with a disability. You have so much love to give that I know in his own way he shows you he loves you, even if he doesn't say it! I have read that these schools really help these children. That should give you hope and hopefully they can give you tips on how to help him learn and grow to the best of his ability. Does Theo show any of the signs that Porter did? I am praying for you!!
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